Category: Books by Me

What follows is a long ago thought from my journal — I think I tapped it into my phone one day on the way to work —  that’s still 100% true. The guilt that can accompany acceptance of loss. Is it okay to be okay?

Usually I am fine.

It’s confusing because it can seem like I am calloused or past it or forgetting. How can such big feelings go away? How can such a big thing become smaller? This used to make me feel guilty. And I would hide it even from myself. Or I would force myself to feel bad.

But now I think I understand it better. It’s not that my feelings are gone. It’s that I know how to access them or put them away. They don’t overwhelm me anymore but I can summon them up when I want to, need to. The feeling is no longer an open wound. It’s a treasure, a precious charm on a chain around my neck that I can take out and kiss when I need to feel blessed.

Many of the observations and realizations that came to me during the period covered by A Kiss Before You Go didn’t appear while I was sitting with my sketchbook open on my lap.  I had thoughts in the middle of the night, while walking to my office, while brushing my teeth, and I would jot them down on scraps of paper or tap them into my phone.  Some of these thoughts were unique and didn’t recur, some were dreams, some were conversations. Many fell into particular categories and my subconscious would polish and deepen them over time. Occasionally, I would put a thought into my sketchbook and later have a better and truer version of that same idea. In the final, published book, I sometimes replaced the first mental sketch with this more developed thought. But at least 75% of the words in the book are the ones that came to me as they are in the page.

Here’s an example, a snippet of a text message from my sister that I saved and look back at when I need it.

“Remember — there were shitty times days and moods when Pat was alive. This is just what life is now and will change again. I promise you that.” — Miranda

She should know.  In addition to Patti’s accident and death, Miranda had to deal with the sudden death of her own husband. Less than a year after they were married, Brian died in his sleep, suddenly, unexpectedly. SInce that tragedy, she has remarried and has a daughter. My sister has had an unfair share of tough times but she has come through them with resilience and refused to let them toughen her soul. She remains empathetic, loving, loyal and smart.

My sister was also Patti’s best friend. She knew her so well and she was so right to say to me in so many words, “Don’t glamorize the past. Accept the present. Don’t despair of the future.” When someone dies, it’s tempting to put them on a pedestal and to think that happiness is vanishing down the sluice hole of the past. Guilt can be overwhelming. And sadness can seem like a never-dissipating fog.

When Patti died, Miranda was the first person by my side and she has guided me through the days since. She is a wise and beautiful person. I’m lucky to have her and to be able to learn from the vast experience of my kid sister.

It’s at the crossroads of life that you learn who is truly there for you.

After sharing my apron drawing recently, I came upon the journal entry I wrote when I first encountered the aprons two years ago, a pain-filled essay that never made it into my book, A Kiss B4UGo.

” I was aiming to empty out a bunch of bags of stuff that have been sitting on our window seat ever since Patti and Donna filled them during their organizational sprees in early March. One of the bags was full of aprons, the bulk of Patti’s collection.

There is something very Patti about aprons. They are girly, though I occasionally had to wear one like some comic strip husband, some Dagwood. They were nostalgic objects, found in flea markets and thrift stores, but for her they were all functional and practical; because she had to cook (and do most everything) sitting down in her wheelchair, they protected her clothes from splashes of grease and spaghetti sauce. Most of them were handmade and whimsical, sewn with novelty prints of roosters or cows and embellished with frills and appliqués.

I went through the bags, finding one of her many purses filled with breath mints and tissues and little notebooks. There was a bag full of wool and half knitted things. There were lots of gift items, things she had gleaned at sales, full of potential and reminding her of someone. But they sat with the tags still on, and I had no idea who she planned to give them to.

I live down the street from a fire station — at any time of the day or night sirens ring out and jack up my blood pressure.  This used cause me great anxiety. I would wait to see if the fire engine or ambulance was going to pull up outside of my house. If I was coming home and the sirens were wailing, I would increase my pace down the street until I came to my corner, fully expecting to see my apartment ablaze, thronged with flashing lights and unfurling hoses.

My oldest neighbors were a couple in their late 80s. She was one of Patti’s favorites and was now had advanced Alzheimer’s. I came home to find her being taken away by this ambulance while her husband stood bewildered on the sidewalk. I felt that they were mirroring my own situation. Fortunately it was a minor incident and she came home in a few days. But then, a couple of weeks later, Arthur had a stroke and died on the living room floor. Two deaths in our building in as many months.

Fortunately, my siren anxiety has faded and gone. I no longer fear the worst, having been through it.

Now that my book actually exists in the real world, can you help me to spread the word and help others find it? The simplest form of that is to share what you think of it on the Amazon page for A Kiss B4 U Go. Write a little or a lot  — but by sharing an opinion, you will help others know whether it’s worth reading or not.

It would also be fantastic if you would share it with people you know, friends and relatives, and the readers of your blog or Facebook page if you are so inclined. If you’d like to ask me questions and share my answers, I would be very happy to do that too.

Starting in January, we will be promoting the book in the press. Magazine, papers, blogs, radio, etc. But I always feel that word of mouth from people who know me and my work is the best and helps make the experience of writing a book complete.

If you have any other ideas on ways I can share the book with people who will enjoy it and get something from it, I am all ears.

I guess it’s appropriate that this spread never made it into the book because it’s about a painful decision I made to not do something.

My friend Steve had moved to Tuscany several years ago and renovated an old farmhouse. We’d been very excited for him and kept abreast of all the changes he was making in this life. He took great pains to make sure that his farmhouse was wheelchair accessible so that Patti could come and visit him.  He put in a special bathroom and was very excited about the day when we would arrive. That day never came.

At Patti’s memorial service, Steve encouraged Jack and me to come and visit him as soon as possible. And we planned the trip for three we should never have put off. My niece Morgan was to take Patti’s place and I bought tickets and served a rental car and we were all ready to go. But at the last minute, I just couldn’t do it.

I couldn’t bear the idea of leaving my home — it just seemed too scary and disruptive.  I was sure that Patti’s absence would hang so heavily over me if we made this long anticipated trip. I felt like I was stepping off a cliff;  it made me think of all the things that we could’ve and should’ve done together but now never would. I imagine waking up in a strange bed in a distant country in the middle of the night and feeling utterly and hopelessly alone. I just couldn’t stand it. Fortunately, Steve was understanding when I told him of our last minute change in plans.

This is still a painful and confusing memory.  I don’t know that I can fully explain it even now. Maybe that’s why it didn’t end up in the book.

This painting of Jack and my niece Morgan is another spread that didn’t end up in the A Kiss B4UGo but means a great deal to me nonetheless.

Morgan was staying with us on the day Patti died. She was studying art education at the University of Ohio at the time and that day was in New York to interview for a summer internship at the Whitney. Morgan is Patti’s sister’s daughter and I have known her since she was born. She is the first child of her generation in our family and I have always loved her very much. When she started to develop an interest in art, of course, we wanted to help her in whatever way we could.

That summer, Morgan was offered an internship at the New Museum on the Bowery in Manhattan and I insisted that she spend the summer with us. Her gentle and caring presence was an enormously important part of our family and she gave so much to Jack and me during those first really difficult months. Morgan has much of Patti’s spirit — she is chipper and energetic and curious. She loves talking about art and using it to help people and she’s a girl — all of which were really welcome additions to our mancave.

Morgan has continued to visit us several times  a year since though, now that she has her MA in Disability Studies and embarked on her career at VSA Ohio, it may be harder for her to come to New York as often as she did as  student. My dream for her is that she will end up in NYC working at one of our many wonderful museums. We need her here.

I am delving back into the journals that were the basis for my new book, AKissB4UGo. Many pages never made it into the published book but still have lots of meaning for me. If you don’t mind, I’ll share them with you over the next few weeks.

After Patti died, I was often struck by the same thought. I would meet a new person, see a new store opening, hear of a new baby being born, or read of a major world event in the newspaper — and each time I would think, “Well, Patti will never know about that.” The world was just going on without her.

This page is an attempt to record that thought. I wrote about the various buildings that New York University is constructing across the street from our apartment. One is a new Catholic center that was just being built; they hadn’t even broken ground when Patti died but now it’s a regular part of the landscape and every day  students go in and out praying for better grades.

If you can decipher my handwriting, you’ll see this story about the NYU student center that was built next door to the Catholic Center a decade or so ago. At the time, Patti became friends with the construction crew and convinced the foreman to spray paint a message across one of the structural I-beams at the same height as our kitchen window. One day I looked out the window and noticed the words, six feet high and in bright fluorescent orange: “Patti loves Danny.”

Eventually they plastered over the message and finished constructing the building but I know that those letters are still on that I-beam, to be found by some future civilization who will discover that we loved each other.

This story’s a little complicated, and I never was in love with my drawing of the buildings, so this page like many others did not end up in the final book.

I am delving back into the journals that were the basis for my new book, AKissB4UGo. Many pages never made it into the published book but still have lots of meaning for me. If you don’t mind, I’ll share them with you over the next few weeks.

Patti left behind a lot of possessions. Years later I’m still going through them. At first I was wracked with guilt at the thought of throwing away anything that she’d ever touched. I just put it back in the box to wait until my heart had hardened a little more.

Some of the things became easier to part with. Patti was a huge collector of newspaper clippings and postcards and had big piles of letters and notes and shopping lists and I went through them over time, sifting them into smaller and smaller groups and filling garbage bags with stuff that meant nothing to me anymore. But there are also many things that I found it hard to part with. Patti’s apron collection is one of them. She loved aprons and pick them up and thrift stores and flea markets and had dozens more than she could ever wear. I still wear them when I do the washing up for cooking a tomato sauce but there’s only so many aprons a man needs.

Of course I think about Jack when I’m going through this process. What will he want of his mother’s? Will he have some future wife who will share Patti’s love for these things? How awful if I’ve thrown away every trace of her obsessions.

I tried carefully through the things that Patty left behind and trying to be a good curator. Of course these things are just things and I don’t really need to be reminded of Patti by an apron or a sale circular or even a love letter. But things also carry the traces of people and one has to handle them carefully and not be overwhelmed by the need to bulldoze the past away, as if clearing my closets of her presence will somehow eliminate the last vestiges of pain.

I don’t know if all those thoughts are evident in this spread from my journal. Probably not. And it was hard to do justice to the beautiful designs of her aprons in a wearily done watercolor, so this spread, like many others, remained in my journal and didn’t make it into the final version of the book.